The last two weeks were filled with appointments with all of our daughter's specialists to discuss the MRI results from their perspective. Here is a snippet of what we learned:
Ophthalmologist: The hemangiomas around our daughter's left eye are shrinking. We learned that the orbit hemangiomas are around the top part of the eye including the eye lid which is why it swelled closed so quickly in her first few weeks of life with the growth of the hemangioma. Our daughter seems to be using both eyes equally which leads us to believe her vision is good.
Dermatologist: The color of the birthmark on our daughter's face continues to fade. The hemangioma on the back of her neck is unchanged, all other hemangiomas have decreased in size.
Pediatrician: Our daughter continues to measure small in her head size and length (10th percentile). Her weight continues to fall off of the growth curve (less than 3rd percentile).
Neurologist: Our daughter seems to be developing typically. She is meeting her milestones as expected. Her brain is developing myelin which shows that it is "working".
The best news of all is that all of the doctors agree that our daughter is healthy enough that her follow-up CT Angiogram that was originally scheduled for October has been pushed back to December. Everyone is encouraged by all that they've seen in the last couple of weeks.
Prayers are working!
