During our appointment, our daughter was really personable. She was very alert and laughed and talked with the three doctors in the room. The dermatologist commented how pleased he was to see that she was on track neurologically. He was not overly concerned about her head size. He did say that it's odd that she's "crossing lines" as she falls off the growth chart. He commented that he would talk with his colleagues in Houston to see if there could be a correlation between head size and PHACE Syndrome. We see the neurologist at the end of next week where we'll talk more about her head size.
I spoke with our pediatrician today to let her know the good news from yesterday's dermatologist appointment. She asked us to keep our daughter secluded through the end of the month. Then, after she has her four month shots, she'd feel much more confident about allowing her to be out around other children. HOORAY!!!
We see the ophthalmologist tomorrow. Hopefully she'll be just as pleased with the progress!
great news!
ReplyDeletejust curious, she is being wean off the steroids right?
FYI...
her live vaccines should be given at least 3 months after the wean is completed.
http://www.nyc.gov/html/doh/html/imm/immcomp.shtml
sorry! for some reason i thought i read that your ped was going to give her vaccines at the end of them month.
ReplyDeletei read your post too fast. sorry about that.
But i would still be alittle cautious about her being around other children IF she was on the steroids for a long time. sorry i can't remember how long she's been on them. it can take up to 3-6 months for them to build their immune after the steroids.
She has been on steroids at some level for three months. We've been weaning off for the last month and are thrilled with this news. We will not be getting the rotovirus vaccine ever (because it's live and we've missed our window of opportunity to start it). We will be getting her regular vaccines, though.
ReplyDelete