We have another round of tests (MRI/MRA) later in July and will then see all of our specialists again (ophthalmologist, dermatologist, neurologist and pediatrician). We will repeat this cycle in October with a CT Angiogram. We are trusting that our daughter looks as good on the inside as she does on the outside!
On March 8th our precious daughter was officially diagnosed with PHACE Syndrome. This blog has been created to help our friends and family learn more about our journey. We will continue to update the blog with new information as we continue with doctor's appointments and medical tests/procedures. If you are interested in a play-by play version of our unfolding story, then the link below (Health Timeline) is the section for you. Thank you for loving and supporting us through this journey!!!
Thursday, July 1, 2010
Typically Developing!
Our daughter had an appointment earlier this week with her pediatrician to follow up on her weight gain, head size and length. Good news...she's staying on the curve! Her head size and length are both in the 10th percentile and her weight is in the 5th percentile...but she's stable! Though she is 5 months old and is still wearing size 0-3 month clothes, she made the progress that you would expect from any other child. The pediatrician deemed her "typically developing"...HOORAY! If this growth trend continues, she's projected to be a little over five foot tall and just over 100 lbs as an adult...she certainly did not get these petite genes from her 5'11" mother!
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She and I will be sweet little short friends!!! :) I'll be glad to not be the only shortie around here!! :)
ReplyDeleteShe is SO precious! Nothing wrong with being petite, I promise! Those eyes are amazing, as I know her heart is too. I'm thrilled she is doing so well. I will continue to pray for you all.
ReplyDeleteAshley