On March 8th our precious daughter was officially diagnosed with PHACE Syndrome. This blog has been created to help our friends and family learn more about our journey. We will continue to update the blog with new information as we continue with doctor's appointments and medical tests/procedures. If you are interested in a play-by play version of our unfolding story, then the link below (Health Timeline) is the section for you. Thank you for loving and supporting us through this journey!!!
Wednesday, February 29, 2012
Great Appointment
Today our daughter had an appointment with her dermatologist. He is VERY pleased with her external birthmarks, MRI results, and development. Though she is the second oldest patient he's ever had on such a large dosage of Propranolol (3 per kilo), he is not concerned. The medication is working and we are thankful.
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